Anybody know going on for mylokethaxis ( my daughter be the 5th diagnosed bag worldwide)?
Answer:
http://jama.ama-assn.org/
This is the web site for the American Medical Journal the journal have hundreds of different types of syndromes within and medical conditions it may be of great use.
My daughter was born 24 years ago beside rare syndrome simply 10 in world and it is where on earth they found her diagnosis.
When you next shift to see consultant ask for written information I did and got it as it is our right to know and make out what we are dealing with.
I be told she would not live past 5 she is 25 surrounded by July and there are in a minute 62 cases however finding information is hard when it is undercooked.
Good luck my friend I can understand why you want this information as knowing is more relieve than not.
Hi,I am very sorry to hear just about your daughter.I have tried a explore there is nil.What type of illness does it come below.I hope there is treatment.Good Luck
i go to google and typed it in and click the right spelling of it consequently go to the first connect wikipedia and it shows treatments
Hi,i'm very sorry to hear more or less your daughters illness, i give attention to it is spelt MYELOKATHEXIS for more info try
http://www.ncbi.nlm.nih.gov/sites/entrez... or google.com
good luck,
Yes the previous poster is right - try spelling it differently.
http://www.medscape.com/viewarticle/4946...
http://en.wikipedia.org/wiki/myelokathex...
http://bloodjournal.hematologylibrary.or...
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